OK, so I am not red all over, but I couldn't come up with any other catch phrase with Red in it. The photo below does not do justice to how red my back and underarm area is. Jeff took the picture yesterday and it is way more red today. It is almost purple. The spot on the top is the most red and then a swath under my arm is about the same color. The rest of my back/side is the lighter color and my chest is covered with splotchy dark red spots (like a rash) that may come together to make the whole area look like a newly painted stop sign. It hurts! and is really itchy. I know that the peak of the redness/burn will come about a week or two after the radiation actually ends, so that means I have about 3 weeks left until I can start feeling relief from all this. It isn't so bad, but that area is also swollen and the skin and underlying muscle are tight from the burn and weren't all the way stretched back to normal from after surgery. (I was not so good about remembering to do my stretches) OK, so it is bad - it is uncomfortable with a seat belt across it, I'm starting to feel it hurt when I lie on my back and even just reaching for something can make the whole area be noticeably painful. Not cry out in pain (we're actually having an issue on this very thing with N - trying to teach her to suck it up and not need consoling for every little scratch) - back to what I was saying, not-cry-out-in-pain, pain; but suck-in-your-breath-sometimes-pain. And the itch can be distracting. I try to gently rub my clothing, just moving it enough to give some kind of relief from the itch. The hydro-cortisone cream helps with that. And I am putting on lotions, aloe and emu oil frequently to help with the burning. I don't know if it is helping to actually cut down on the severity of the burns or just giving temporary relief to the area??? I don't want to find out by cutting down on it all. As I say, just about a month from now, I should be seeing noticeable difference and recovery from all of this!
My energy level is pretty much back to what it was before all this started. Sometimes during the day I hit a wall and need a power nap - and sometimes the power nap turns into a couple hours, but that was normal a year ago. I noticed that my sleep patterns are really similar. For a few days out of the month, I wake several times during the night. Some nights I am awake for a couple hours. And some nights (like last night!!!!) I actually sleep all night without waking or having to get up. I am awakened now with hot flashes, but except for the couple nights where I wake up 5 times - every 45 minutes - and can't go back to sleep for half an hour, it is all manageable. I guess there are some medications (surprise! NOT), to help with hot flashes, but they are anti-depressants and I don't want to add something that I don't have to. The Tamoxafin is enough on it's own. Dr. Sri did say that I most likely will adjust to the drug and level off somewhat so the side effects won't be so drastic.
I went in for a temple recommend interview the other night and President Martin - the counselor in the Stake Presidency - who interviewed me is an Oncology Pharmacist. He knew all about the drugs that I had and was able to tell me a little about the advances that have been made very recently. Having the HER2 positive used to be a really bad, bad thing and survival from that type of breast cancer was very low. Well, with Herceptin (which I read has only been in use for the last year or so), being HER2+ is actually a very easy and straightforward treatment now. Herceptin is a type of miracle drug for that and they pair it with Perjeta which was the only option before and it raises the survival rate way higher!
Not much other news from the family. We are enjoying the nice spring that is happening right now. Last week most days were actually near or above 80* and this week just around 70. Spokane doesn't have lots of dreary misty, rainy days. When it rains, it rains, then moves on to partly sunny or all sunny. Having grown up in Western WA, and being one of very few people who really like that weather there, it is hard to adjust to mostly sunny days. I like a big storm and rain for a few days in a row. I still feel that when the sun comes out I need to be outside soaking it up because it won't stay for very long. But I'm getting used to it. I'm looking for some fun hiking spots close by. I have started a hiking group with anyone who wants to join me. I would like to finally hike Mt. Si and Rattlesnake Ridge this summer when I am visiting my mom and dad. There, I wrote it down, it's a goal! All those years we lived in Snoqualmie, and I've never climbed those two popular hikes. I have done Little Si, but never all the way up to the top of Mt. Si. So I am doing hikes around here to bring my body up to a good fitness level to do this. That's about it!
OH, tomorrow will be the last of 5 weeks of radiation. Dr. Call said that the last week, they focus the rays directly on the surgery scar, so it won't be blasting the whole area like they have for the last 5 weeks. That is a relief!


